life is pretty weird on its own. when it's complicated by partial seizures, it can take that weirdness to a whole new level. deja vu makes the present seem like a rerun of the past. confusion and memory loss make it hard to do ordinary things, and even when controlled by medication or surgery, that control comes at the price of potential risks and side effects. not treating it is even more dangerous, given the statistics on sudden unexplained death in epilepsy (SUDEP).
despite all this, there are a lot of us out there living our lives, working, having relationships and families, at times barely distinguishable as a person with epilepsy. i'm starting this group because i want to meet some of these people. i don't want this to be just another support group -- i want to talk about ordinary things with people who understand what it's like in the surreal world of an epileptic. most of the people out there cant understand what its really like; it's easy to feel alone in your own head when your brain has a life of its own and you're still conscious enough to know it.
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